Speechless...we use that term a lot in our lives, but how many times have we actually felt that way? I mean REALLY been speechless? We usually manage to mutter something...I'm Sorry...I didn't know that...etc. But since we have been faced with battling this horrible disease, I find that I am speechless more and more.
Many times I am afraid if I talk, then the strength I am using to fight back the tears will disappear, and I will cry. Not that I am afraid to cry, it feels really good sometimes; I just know that crying is contagious and I don't want Dad to catch it. So, I usually just sit speechless, and he loves the company. Sometimes just holding his hand gives him great comfort. A smile and a wink from across the room will almost always result in a returned smile and wink. Saying, "I Love You" will always get the same phrase returned.
We have called in Hope Hospice after Barry spent 10 days in the hospital for the same lung procedure, this time on the right lung. He has fought a very strong battle and we are all so very proud of his strength. This was a decision that he made with the blessing of his wife, parents, children, and friends. What this means is that our focus has changed from fighting cancer to enjoying the time that remains. This means that nurses and aides come to the house. Trips to the doctors' offices are greatly reduced. We now switch from making him eat things to make him strong to letting him have ice cream for dinner. His time with us is limited. The cancer has begun to progress and we are making him as comfortable as possible with medication, oxygen, love, and laughter.
Visitors-We welcome visitors and telephone calls, but Barry isn't always up to either. We are now taking shifts at spending time with him all day. He is too weak to get out of bed by himself and needs help to just sit up. If you would like to visit, we ask that you call the day of. Please call the home number (925) 606-6352 and don't be offended if he doesn't feel like visitors. He spends most of the day laying in or on the bed in a t-shirt and boxer shorts...or less.
What to Say-Something to keep in mind is that Barry doesn't like to talk about cancer! Nobody REALLY likes to talk about cancer. Come prepared with a picture or a story that has fond memories for both of you. Talk about his kids! (That is my favorite topic!) Help him to remember times when he was healthy, strong, and laughed. There is nothing that makes me smile more than to see him smile. His laughs are harder to come by today, but even a giggle is enough to brighten the house for a whole day.
I can't even begin to describe how difficult it is to publish this posting. I have switched out the Relay slide show to the pictures of Dad throughout the years. In closing, I wanted to share a story with you.
I was sitting in the hospital last week when Dad was taking a nap. I was working at the foot of the bed. I noticed that his hands were moving as he slept and as I looked closer, his hands were busy. Not just the usual twitching and jerking, but he was really doing something. When he woke, I asked what he was working on in his sleep and he couldn't remember.
That night I awoke from a dream. In my dream I could see what Dad was dreaming...this was my superhero power...along with being able to see through some glass, but that is a different story. But I could see exactly what he was dreaming about. He was healthy and I was young. He had taken me out fishing on the banks of the Delta and I had gotten my fishing line tangled when I was trying to cast. His hands were so busy trying to untangle my fishing reel. All the while he was looking down at me and smiling. I felt bad that I had tangled the line, but he didn't seem the least bit bothered.
It gives me great comfort in knowing that these are the memories that I have of my Dad; even if fabricated in my own mind. I know that he will always look down at me with a smile and will always be there to untangle whatever mess I make.
I Love You All and Love You Dad!
Glen
Subscribe to:
Post Comments (Atom)
Glen, thank you so much for sharing all the stories and postings. Damon & I are here if you or anyone else in the family need anything; I'm still unemployed. Whether it's real food, ice cream for dinner, or someone to hold someone's hand, don't hesitate to call.
ReplyDeleteee cummings wrote:
ReplyDelete"I carry your heart with me (I carry it in my heart).
I am never without it (anywhere I go, you go, and whatever is done by me is your doing).
I fear no fate, I want no world, for you are whatever a moon has always meant, and whatever a sun will always sing, is you.
Here is the deepest secret nobody knows (here is the root of the root and the bud of the bud and the sky of the sky of a tree called life, which grows higher than the soul can hope or the mind can hide) and this is the wonder that's keeping the stars apart
I carry your heart (I carry it in my heart)."
Yesterday Barry reminded Staci that he will always be with her - in her heart and I thought of this poem (one of my favorites). I want to remind everyone, children, friends, family and especially Shirley, you will always carry his heart in your heart. Each of us carry his heart in our hearts.
I know your hearts are heavy and feel as though they're breaking but try to remember Barry's carrying your heart, in his heart, and I know he would gladly bear all of your pain and sorrow, if he were able. He will always be with you and you with him.
Also know I carry your heart with me (it is in my heart).
Barry - thank you for touching my life and making such a difference. Thank you most of all for our three awesome children.
If prayers truly have wings then you shall soar!
I am so moved by your families strength. Your family bond is the glue that will keep you strong. This is a long, hard yet very courageousness road Barry is walking. I do not personally know him but I know members of the family and I am moved by your togetherness. I know the days are filled with bipolar emotions. Laughing one minute and crying the next with a few soft sighs in the middle. Hold on to your family and friends. We are here for you. Whatever you may need (I'll even let you yell - just no hitting).
ReplyDeleteBarry - you have made such a wonderful impact on this world. Your children and grandchildren are proof that you are a magnificent man with love radiating from your very soul. I am sad to say I never had the opportunity to meet you but I can say the world is a better place (if not a tad bit more sarcastic) with the gifts of life you have provided. You have been in my thoughts, dreams and prayers (who knew I prayed?!). I may not know you but I have met you through proxy and that has been an honor.
This story is beautiful, and I love you for sharing it.
ReplyDelete